Hi there,

This prompt took a bit of soul searching. I struggle with feeling positive all the time, my life is incredibly challenging and stressful and it will only get worse, but the one positive emotion I do feel is love.

Love for my family who help me every day with all the many tasks that are difficult, and for those in my family who reach out when they have the time. My friends who make time to see me or contact me .

Those who help me when I need it . Having a terminal illness (ALS) a form of MND makes it hard to be positive. I am positive there is no cure and positive I can’t improve so it’s hard to feel good about any of that .

There are no positive affirmations in my life just the reality of every day . Death by a thousand cuts.

I love those in my life who care enough to reach out,it’s only when you find yourself in a situation where you can’t help yourself a lot of the time that it reinforces who in my life actually care. This illness is isolating .I had to give up my license so I don’t get out all that much I am limited to taking myself on the scooter if I need to go out. Obviously I am limited by distance but local trips are fine.

I love taking myself out it’s slow but the freedom is worth it. I need help getting back into the house and also charging the battery of the scooter so not completely independent just the illusion of it for a little while.

I am writing this sitting at my sewing machine my hands have fatigued so I need to wait and see if I can continue.

There are no future plans now just everyday to deal with.

I loved my life before.

Sue 🙏