Tag Archives: ALS

Time stops for No one !

Posted on November 7, 2024 by suebsewbyme

This message really resonates with me. Life is an adventure that changes all the time in so many ways. For me ALS/MND has been an ever changing shit show. A constant disappointment , no hope, no promise of tomorrow just … Continue reading →

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A Shacket for my son

Posted on September 23, 2024 by suebsewbyme

Hi there as usual I am still sewing lots but blogging less. I made a Shacket for my son for his birthday. I have 2 sons one in Melbourne ,this was for him , and one in Canberra he had … Continue reading →

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These days ,

Posted on January 16, 2024 by suebsewbyme

Hi there, Hope you have had an opportunity to enjoy some creative fun. Whatever that may be ? I saw this and thought it worth noting. I find my days mapped out depending on the energy I need to expend. … Continue reading →

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Merry Christmas Everyone

Posted on December 18, 2023 by suebsewbyme

I will be sewing when I can over Christmas, my carer will still come and I am staying home for the foreseeable future. I saw this poem on Facebook and it really spoke to me ; I am looking forward … Continue reading →

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Another day in ALS world

Posted on November 21, 2023 by suebsewbyme

Today is my usual day to blog about my sewing or life or both . Today I awoke at 4.30am to noise. I have been sleeping in my lift chair for the past 2 nights , my bed was dismantled … Continue reading →

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Life

Posted on October 14, 2023 by suebsewbyme

What have you been putting off doing? Why? Hi there, My life is in a pattern I call “hurry up and wait.“ I have been putting off moving back into my room downstairs while the bathroom was renovated. The renovation … Continue reading →

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ALS WTF

Posted on March 7, 2023 by suebsewbyme

How the hell does this make sense?MND is my reality my life is now ebbing and flowing to the rhythms of my disease. This is not how I planned my life to go , I loved my life , my … Continue reading →

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