Tag Archives: dailyprompt

What is one question you hate to be asked? Explain. The question I struggle with is how did you find out you had MND / ALS ? Having to explain the devastating facts of my illness repeatedly is incredibly difficult. … Continue reading →

You have three magic genie wishes, what are you asking for? This prompt really hits home . There are currently no fixes for MND / ALS we are all terminal . So my number one wish would be a cure … Continue reading →

What things give you energy? I remember what that was like I miss having energy to spare. I feel energised when I spend time with friends and family but nothing gives me energy. I constantly weigh up possible movements and … Continue reading →

What positive emotion do you feel most often? Hi there, This prompt took a bit of soul searching. I struggle with feeling positive all the time, my life is incredibly challenging and stressful and it will only get worse, but … Continue reading →

What does “having it all” mean to you? Is it attainable? A cure for ALS would be having it all for me . I don’t have hope that I will be alive to see it . In the absence of … Continue reading →