Tag Archives: MND

A Shacket for my son

Posted on September 23, 2024 by suebsewbyme

Hi there as usual I am still sewing lots but blogging less. I made a Shacket for my son for his birthday. I have 2 sons one in Melbourne ,this was for him , and one in Canberra he had … Continue reading →

Posted in Uncategorized | Tagged , , , , , , , , , , , , | Leave a comment

These days ,

Posted on January 16, 2024 by suebsewbyme

Hi there, Hope you have had an opportunity to enjoy some creative fun. Whatever that may be ? I saw this and thought it worth noting. I find my days mapped out depending on the energy I need to expend. … Continue reading →

Posted in Uncategorized | Tagged , | Leave a comment

Life

Posted on October 14, 2023 by suebsewbyme

What have you been putting off doing? Why? Hi there, My life is in a pattern I call “hurry up and wait.“ I have been putting off moving back into my room downstairs while the bathroom was renovated. The renovation … Continue reading →

Posted in Uncategorized | Tagged , , , , | Leave a comment

ALS WTF

Posted on March 7, 2023 by suebsewbyme

How the hell does this make sense?MND is my reality my life is now ebbing and flowing to the rhythms of my disease. This is not how I planned my life to go , I loved my life , my … Continue reading →

Posted in Uncategorized | Tagged , , , , | 10 Comments