How the hell does this make sense?
MND is my reality my life is now ebbing and flowing to the rhythms of my disease.

This is not how I planned my life to go ,

I loved my life , my family and all the wonderful challenges that were part of my day to day .

I don’t love my life now !

Every day I wake up to the knowledge that something may have changed. Is this the day ?

Or have I managed to stay the same for another little bit. Prognosis is unknown but progression is inevitable ,no treatment or cure just managing the issues as they arise.

The days seem endless most days I am home alone . Sometimes I see my family (at the moment my husband and son ) in the morning before they leave for work, but most days I don’t. They are both active and exercise after work so that means they leave at 7am or earlier and are home for dinner around 8pm . Sometimes I have an appointment so I leave the house on the scooter for that . Otherwise I am home.

I have loads of friends and family , but few who call or pop in .

It’s funny you don’t know who your true friends or tribe is until you find yourself incapacitated somehow.

When I did my costume and millinery course I felt I had found my tribe those people who shared my passion and spoke my language . I now have little contact with them . If you can’t be there amongst it you are forgotten.

The world is very selfish in a lot of ways . Everything is set up for the able bodied and there are some concessions for disabled people but not as many as there should be.

The decision to leave the house and where to go is completely governed by what is accessible. Are there footpaths and ramps ,are the bathrooms accessible. All these are taken into account before I agree to go anywhere.

I hate that it’s not just a matter of hopping in the car and going like it used to be. I have given up my license as it’s not really safe any more for me to drive . I only enjoy the experience if I don’t have to walk and as I can’t lift my wheelchair into my car or out it means I couldn’t use the car on my own before. I use the scooter almost always. So if it’s raining I stay home.

Life is a daily challenge, never easy , rarely fun , sometimes it’s ok.

Sometimes not so much.

Trying for positive energy means not allowing myself to be bored it requires keeping busy .

Anything that takes my mind away from myself is good. Sewing helps but managing fatigue means it takes longer and it’s hard to feel good about making clothes for myself when I don’t go anywhere much and I can’t wear a lot of my favourite styles of clothing anymore . I upload them on the blog and then keep or give away . My hands are an issue these days they fatigue , so I have been advised to try not to overdo it. So that sucks. I am a tactile creative and now I am just supposed to stop using my hands as much.

I was sitting at the sewing machine and my fingers are fatigued so I needed help to thread a needle. Then I need to get food as my body winds down if I don’t eat . I can’t eat around my sewing so a break is needed. I used to sew all day and forget time , just lose myself in the process that’s not possible anymore , my body demands attention and dictates my output. It is constantly frustrating.

I plan my time energy by needed , duration possible And breaks required. It’s hard for spontaneous creative urges to be successfully produced when there are roadblocks everywhere.

I hope I can continue to create for as long as possible we shall see.

Sue 😏

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Lovely Blue Floral


Today I am blogging about a jacket I made quite a few years ago but for some reason I didn’t blog about it . I still wear it and love it. The pattern is a Vogue Marcy Tilton Pattern V8982 I don’t know if it’s available anymore. As a short person it is better to wear cropped jackets . They are more flattering and now being in a wheelchair I find they work well .

I made the jacket but I will make another and a vest I think going forward. A great pattern.
Perfect buttons
The fabric was a gorgeous linen from The Fabric store.
I underlined the bodice with a white cotton taken from an old sheet . It is beautifully soft .

When I bought this linen I also bought a matching blue linen and made the Tessuti Robbie pant with that. I have blogged about those. This is a delightful jacket to wear light and bright and feels incredible on .

Happy Sewing,


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Dragons Anyone

Hi there,

I have over the years tried to make gifts for the small people in my life that are a bit different. Last year I made dragons. I used Simplicity pattern 8715

I used the dragon with wings pattern

I have made 10 dragons so far with 5 more to go then I will be finished forever .

I think making these has contributed to my hands losing strength and dexterity due to fatigue . I have been advised that the less I fatigue my hands the longer they will still work. I have also been advised to find interests that don’t involve using my hands to much . This is a tricky ask as a tactile creative , I am looking at electric scissors and tools to help me navigate this.

The first dragon
The next 2
The next 2
2 more
Poly fill and teddy bear stuffing tool essential for this process
Lots of fiddly pieces to put together and stuff.

This is really not a quick sew but all the little people who have received these love their shoulder dragons .

Hope you are enjoying your creative exploits,

Happy Sewing,


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Again Sewn with Love

As I had made a birthday jacket for my son from the silk kimono jackets my daughter requested some shirts from other ones.

Vogue 1476
Gorgeous silk

These three were made for her as a birthday gift as well . I also gave her a shirt I had made many years before I fixed the buttons and buttonholes and tidied it up my skill has improved in the last 30 years.

Me wearing it in LA many years ago.

I don’t know what pattern I used for this shirt . The print is very retro .

I hope you are well and creating however you can,

Happy Sewing ,

Sue 😊

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Sewn with Love

In 2021 I decided to make a birthday present for my son using 2 vintage silk kimono jackets.

I asked him to select the colours he liked then I proceeded to make a reversible bomber jacket for him . I had his measurements and was able to do a fitting when he came up from Melbourne in March that year so it was ready for his July birthday when he was in lockdown.

One jacket
He preferred the inside colour
The other jacket
The grey side
The red side
The pattern I used for this make

I ordered the reversible open ended zip online and ordered a few extra for next time.The kimono jackets were purchased from Edo Arts a Sydney Japanese furniture and textiles store .

This was an enjoyable make and my son really likes it.

Happy Sewing

Sue 😊

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Melbourne cup fun

Hi ,

As I said last week I will show you the ensemble I created to wear last year to a Melbourne Cup luncheon. Also the top I blogged about last week .

Arrival time wearing my jacket Headpiece and the top .

I made a jacket in a pink tweed fabric it is unlined and I altered the pattern to accommodate wheelchair ease of use. Splits at the side , not restricting full sleeves for movement.

Jacket and headpiece
Back view

The jacket is unlined so good to wear in warmer weather. It is really comfortable . I bought a pink headband piece then using the fabrics of my makes and some ribbons, I altered it to work for me .

I had a lovely day

This look came together when a friend was visiting we got the offer to attend the lunch and then looked at my stash and I came up with a plan.

This is the pattern for the jacket and the fabric I used .

I changed the jacket sleeves added bows and added the belt. I shortened it and added patch pockets to the front .

This was a very satisfying make and two pieces I will enjoy wearing.

Happy Sewing ,

Sue 😊

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Fabric love

Hi ,

I have always been drawn to fabrics that are a little different fibre content is important but sometimes I am so in love with the possibilities that I play .

Side view
Back view

This amazing fabric was part of a fabric swap I attended with Sydney Spoolettes a few years ago.

It is silk with rows of triangle pieces of silk attached it feels glorious to wear . I made the tunic top a self drafted boxy style. I had the rows going straight across for the arms and neck area and going down around the body with an overlap at left centre front . It was made to wear at a Melbourne cup lunch . I will post those pics next time.

Happy Sewing,

Sue 😊

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Where I find myself now……

Hi ,

Sorry I have been absent for a while . I am still sewing and there are lots of things to share but I need to let you know that my life has changed drastically.

In Dec 2020 I injured my knee and it would not support me .
In January 2021 I had a fall whilst building a bed that shattered my shoulder so I had a reverse shoulder replacement.

Then in June 2022 I had an ACL reconstruction. Lots to deal with that have made blogging way down on the list of priorities.

In August 2022 I was diagnosed with ALS a form of Motor Neurone Disease . I have been told I have the slow onset type but it still affects my legs . So I can’t take a picture of myself any more I can’t move fast enough.

I have made lots of things over the past few years but I will just put up what I have pictures of .

This is the latest make , I finished this top a few weeks back.

This top is a very comfortable style a little fiddly as I made it in silk chiffon from The sewing Basket shop at Newington. French seams throughout . I added elastic to the sleeve edge .

The pattern is M 7760

I will definitely make it again it is easy to wear.

The pants are a pleated black satin knit I made using the Tessuti Robbie pant pattern but added elastic stitched at the waist . This was the first outing for these pants as I had made them in 2020 but didn’t wear them . They work well for me now as I get around in a wheelchair often they are easy on and very comfortable.

I hope you are enjoying your life and making the most of every day. That’s what I am trying to do. Every day is the best I can be so I need to make the most of everyday.

Take care,

Happy Sewing 😊


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The Here and Now,

Hi All,

I have been very neglectful of my blog in recent times . I think it was hard to feel motivated to chat about my makes when I really didn’t have any interest. I was making masks like everyone being careful and staying home, helping family and not working like so many others. I had a few jobs to do in my workroom but no costume work.

In 2020 I did quite a bit of sewing and one garment I was really happy with was made using a free Mood pattern called The Wilder Top. It is wonderful that you can get so many great patterns from Mood. This pattern works really well with the embroidered mesh or organza that is around at the moment.

This pattern was really easy to make up it is one of the few that needed no adjustment at the waist, to accommodate my high waist . I did use French seams so that they would be invisible, though.

The fabric was purchased from Spotlight in a sale. I hadn’t decided what to make until I saw the mood pattern. I love it and will definitely make more from this pattern in the future.

Although it may be a slow start to 2021 as I have fractured my shoulder and had a reverse shoulder total reconstruction. As my workroom is not conducive to a sling , I will need to wait a while before I can get back in there.

I hope you have a safe and healthy Year,

Happy Sewing 🙂


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Me Made May 2020 part 2

Hi there,

I needed to break up the me made may post just because of the sheer volume of information  and  of time involved.  I am not a fan of hours in front of a screen , so  I needed to break it up. Now we have the rest of the month Day 16, to Day 31 .

Day 16 to 31.

Day 31

The list of garments,

Day 16:- Fabric from Spotlight last year, a self drafted cosy top .

Day 17 :- Pattern Marcy Tilton V8430 again. A boiled wool that I needle felted on to replicate the design on the pattern envelope.

Day 18:- The Travel Dress from Rhonda Buss at . A great pattern made from Spotlight lightweight knit with wool surface design.

Day 19 :- Kyoto Vest from Tessuti patterns made in a wool remnant from The fabric Store.

Day 20 :- Leopard print knit fabric from Spotlight in blue. The pattern is from Studiofaro design ideas pattern challenge.

Day 21:- A felted silk wrap shawl. I made this in a workshop I did with Rae Woolnough. a textile  artist in Sydney.

Day 22 :- A Raincoat that is my go to it is a Marcy Tilton pattern V9070 I made it in black rainproof fabric from Spotlight.

Day 23:- This is a three way wrap I made from a Pitt Trading wool remnant.

Day 24 :- A Style Arc “Samantha”top. I have made it before in this.

Day 25 :- A grey fake fur coat , fabric from Spotlight the pattern is Burda Style  here .

Day 26 :- A lovely felted wool coat lined in silk , a Burda Style pattern details here.

Day 27 :- A self drafted A line dress in fabric I absolutely adore. I am sorry I had it on my stash and did not make a note of where I got it.

Day 28 :- A self drafted jumpsuit details here. 

Day 29 :- A over top in silk and a satin under slip top both Burda Style patterns details here.

Day 30 :-V9305 Tunic , I have made it before.

Day 31 :- A wool Coat fabric from The Fabric Store last winter. Finished this Autumn. A Burda style pattern 6987.

I hope you are well and safe and staying on top at this crazy time.

The more I am delving into the garments I have made , I am rediscovering those pieces I love and those I need to tweak . Over time  my taste has changed and also  my wardrobe requirements . I find these days (when I get back to work) that I am more often in pants and rarely in dresses even in Summer so my wardrobe will have to adjust accordingly. I am not wearing heels these days so hems need to be adjusted to reflect that. Versatility is the backbone of my creative process I love making things that can be worn a number of ways.

As we move into winter here in Australia I realise I have neglected my winter garments and need to up my game. I am spending a lot of time in my workroom but doing lots for others and not much for myself , time to readjust. I hope to have some new makes to show, and  will blog those I haven’t, It is time to get to work.

Take care, happy creating,

Sue 🙂


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